Huntington's experts from the Huntington's Study Group (HSG) and the European Huntington's Disease Network (EHDN) are working to create practice guidelines for the care of Huntington's patients. Creating rational practice guidelines is a daunting task, but will be essential for improving care when too often the majority of physicians have been given little or no information.
Though work is being done on practice guidelines, it takes a lot of time. It will probably take an even longer period of time to change physician practices. In an attempt to fill the gap --in addition to the HDDW treatment pages -- we will begin a major focus on drug and non-drug treatments more recently reported for HD.
Let's begin . .