HSG-2012-Huntington’s Disease in Clinical Practice

Dates: 11/8/2012 – 11/10/2012

Tuition: Free for preregistration, $25.00 at the door. Location: Hyatt at Olive 8, 1635 8th Avenue, Seattle, WA

Course Director: LaVonne Veatch Goodman MD, in coordination with members of the Huntington Study Group Education Committee

Course Description: This course will coincide with the Huntington Study Group Annual Meeting and Research Symposium. Despite the availability of symptomatic therapies, Huntington’s disease patients and families are often under-treated. To address this problem, national and local Huntington’s experts will present practical information for community providers (physician generalists and subspecialists, nurses, and social workers) on the symptomatic treatment and care for Huntington’s disease patients.

Topics on the first two days will include current expert recommendations for genetic counseling, treatment of both motor and behavioral/psychiatric symptoms, use of ancillary speech and physical therapies, advocating for disability benefits, and palliative care for late and end-stage patients. On the final day, there will be a poster session and presentations by the experts on recent clinical research.

Thursday, November 8, 2012 (3 CME Hours)

2:00-3:00 pm


3:00-3:30 pm

Welcome and Introduction

Ira Shoulson, MD

LaVonne Veatch Goodman, MD

3:30-5:00 pm

Breakout Sessions

UHDRS Training

Physical, Occupational and Speech Therapy for HD

Ramon Rodriguez, MD

Karen Anderson, MD

Leigh Beglinger, PhD

Ashwini Rao, EdD, OTR

Deanna Britton, PhC, CCC-SLP

5:00-5:30 pm


5:30-6:30 pm

Evolution of Genetic Counseling for Huntington’s Disease

Clare Gibbons, MS, CCGC, CGC

Thomas Bird, MD

Susan Creighton, MS, CGC

Corrie Smith, MS. CGC

6:30-7:30 pm

Welcome Reception

Friday, November 9, 2012 (7 CME Hours)

7:00-7:45 am

Registration and Breakfast

7:45-8:00 am

Welcome and Introduction

LaVonne Veatch Goodman, MD

8:00-8:30 am

Clinical Genetics of HD

Thomas Bird, MD

8:30-9:00 am

Overview of Pre and Early HD

Blair Leavitt, MD

9:00-9:30 am

Overview of Middle Stages of HD

Ali Samii, M.D.

9:30-10:00 am


10:00-11:00 am

Successfully Advocating for HD Disability

Sam Frank, M’D.

Jane Kogan, LMSW

Bonnie L. Hennig, MSW, LCSW, QCSW, DCSW

11:00-12:00 am

Overview and Management of Late and End-stage HD

Martha Nance, MD

12:00-1:00 pm


1:00-3:00 pm

Behavioral Treatments for HD with Case Presentations

Mary Edmondson, MD.

Karen Anderson, MD

Mark Groves, MD

3:00-3:30 pm


3:30-4:30 pm

Identification and Management of Motor Symptoms of HD

Ralf Reilmann, MD


Support Services and Clinical Research Opportunities in the Northwest

Chris Wick, MSW, LICSW

LaVonne Veatch Goodman, MD

Saturday, November 10, 2012 (3 CME Hours)

Sixth Annual Huntington Disease Clinical Research Symposium: 8:00am -12:30pm

Symposium Poster Session from 8:00-9AM

The Symposium will feature keynote addresses beginning at 9:00am by:

  • Charles Sabine, HD Advocate and Mary Edmondson, MD, Duke University Medical Center
  • Ashwini Rao, EdD, OTR, Columbia University
  • Pierre Tariot, MD, Banner Alzheimer's Institute
  • Blair Leavitt, MD, University of British Columbia

In addition to these keynote addresses, clinical scientists will be presenting their original research on relevant topics of interest to the HD community today. The Symposium will conclude with an open panel discussion, which will present audience members with the opportunity to interact with the day's presenters.