Dates: 11/8/2012 – 11/10/2012
Tuition: Free for preregistration, $25.00 at the door.
Location: Hyatt at Olive 8, 1635 8th Avenue, Seattle,
WA
Course Director: LaVonne Veatch Goodman MD, in coordination with members of the Huntington Study Group Education Committee
Course Description: This course will coincide with the Huntington Study Group Annual Meeting and Research Symposium. Despite the availability of symptomatic therapies, Huntington’s disease patients and families are often under-treated. To address this problem, national and local Huntington’s experts will present practical information for community providers (physician generalists and subspecialists, nurses, and social workers) on the symptomatic treatment and care for Huntington’s disease patients.
Topics on the first two days will include current expert recommendations for genetic counseling, treatment of both motor and behavioral/psychiatric symptoms, use of ancillary speech and physical therapies, advocating for disability benefits, and palliative care for late and end-stage patients. On the final day, there will be a poster session and presentations by the experts on recent clinical research.
Thursday, November 8, 2012 (3 CME Hours)
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2:00-3:00 pm |
Registration |
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3:00-3:30 pm |
Welcome and Introduction |
Ira Shoulson, MD LaVonne Veatch Goodman, MD |
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3:30-5:00 pm Breakout Sessions |
UHDRS Training Physical, Occupational and Speech Therapy for HD |
Ramon Rodriguez, MD Karen Anderson, MD Leigh Beglinger, PhD Ashwini Rao, EdD, OTR Deanna Britton, PhC, CCC-SLP |
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5:00-5:30 pm |
Break |
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5:30-6:30 pm |
Evolution of Genetic Counseling for Huntington’s Disease |
Clare Gibbons, MS, CCGC, CGC Thomas Bird, MD Susan Creighton, MS, CGC Corrie Smith, MS. CGC |
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6:30-7:30 pm |
Welcome Reception |
Friday, November 9, 2012 (7 CME Hours)
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7:00-7:45 am |
Registration and Breakfast |
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7:45-8:00 am |
Welcome and Introduction |
LaVonne Veatch Goodman, MD |
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8:00-8:30 am |
Clinical Genetics of HD |
Thomas Bird, MD |
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8:30-9:00 am |
Overview of Pre and Early HD |
Blair Leavitt, MD |
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9:00-9:30 am |
Overview of Middle Stages of HD |
Ali Samii, M.D. |
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9:30-10:00 am |
Break |
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10:00-11:00 am |
Successfully Advocating for HD Disability |
Sam Frank, M’D. Jane Kogan, LMSW Bonnie L. Hennig, MSW, LCSW, QCSW, DCSW |
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11:00-12:00 am |
Overview and Management of Late and End-stage HD |
Martha Nance, MD |
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12:00-1:00 pm |
Lunch |
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1:00-3:00 pm |
Behavioral Treatments for HD with Case Presentations |
Mary Edmondson, MD. Karen Anderson, MD Mark Groves, MD |
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3:00-3:30 pm |
Break |
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3:30-4:30 pm |
Identification and Management of Motor Symptoms of HD |
Ralf Reilmann, MD |
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4:30-5:O0 |
Support Services and Clinical Research Opportunities in the Northwest |
Chris Wick, MSW, LICSW LaVonne Veatch Goodman, MD |
Saturday, November 10, 2012 (3 CME Hours)
Sixth Annual Huntington Disease Clinical Research Symposium: 8:00am -12:30pm
Symposium Poster Session from 8:00-9AM
The Symposium will feature keynote addresses beginning at 9:00am by:
- Charles Sabine, HD Advocate and Mary Edmondson, MD, Duke University Medical Center
- Ashwini Rao, EdD, OTR, Columbia University
- Pierre Tariot, MD, Banner Alzheimer's Institute
- Blair Leavitt, MD, University of British Columbia
In addition to these keynote addresses, clinical scientists will be presenting their original research on relevant topics of interest to the HD community today. The Symposium will conclude with an open panel discussion, which will present audience members with the opportunity to interact with the day's presenters.
