On November 8-10, the Huntington Study Group (HSG) is bringing two exciting events to Seattle to coincide with their annual meeting. First, as they have done the last 5 years they will host a Clinical Research Symposium and Workshop for families in the Northwest communities. And next, a brand new event: "Huntington's Disease in Clinical Practice" a Continuing Education Course (up to 12.5 FREE hours) for doctors, nurses, social workers, and genetic counselors will be offered -- made possible by a grant from the Griffin Foundation.
Now is the time to sign up -- you and your family
members for the symposium, and your doctor for the
The Sixth Annual HD Clinical Research Symposium and Workshop
When: Saturday, November 10, 2012, 8:30am-3:30pm at the Hyatt at Olive 8, 1635 8th Avenue, Seattle, WA
Symposium Details: This morning event presented by the Huntington Study Group which is comprised of hundreds of clinical researchers from all over the world.
Symposium Poster Session from 8:00-9:00am
The Symposium will feature keynote addresses beginning at 9:00am by:
- Charles Sabine, HD Advocate and Mary Edmondson, MD, Duke University Medical Center
- Ashwini Rao, EdD, OTR, Columbia University
- Pierre Tariot, MD, Banner Alzheimer's Institute
- Blair Leavitt, MD, University of British Columbia
In addition to these keynote addresses, clinical scientists present their research on relevant topics of interest to the HD community today. The Symposium will conclude with an open panel discussion, which will give audience members the opportunity to interact with the day's presenters.
Workshop Details: The afternoon event, presented by HSG, HDSA, and HDDW, is a special workshop for HD families and HSG researchers involved in clinical research. It will focus on the importance of family participation in research -- the only way to get new drugs for HD. Charles Sabine will jump start this session, and be followed by personal stories from several individuals who have participated in clinical research. Next is the important interactive workshop where audience participation is invited to discuss the reasons why families do -- or don't -- participate.
The First "Huntington's Disease in Clinical Practice" Continuing Education Course
When: Thursday, November 8, 3:00 pm-6:30pm, Friday, November 9,
7:45am-5:00pm, Saturday morning, November 10, 8:30-12:00. Where:
Hyatt at Olive 8, 1635 8th Avenue, Seattle, WA
Despite the availability of symptomatic therapies, Huntington’s disease patients and families are often under-treated. To address this problem, national and local Huntington’s experts will present practical information for community providers (physician generalists and sub-specialists, nurses, social workers, and genetic counselors) on the symptomatic treatment and care for Huntington’s disease patients. Topics on the first two days will include current expert recommendations for genetic counseling, treatment of both motor and behavioral/psychiatric symptoms, use of ancillary speech and physical therapies, advocating for disability benefits, and palliative care for late and end-stage patients. The HSG clinical research symposium, which will include a poster session and presentations by the experts on recent clinical research, occurs on the final day.