The primary objective of the "HDDW Individual Therapeutic Trials" (ITT) is to facilitate a medically supervised and personal best treatment plan for the person with Huntington's disease. It is known that many people with symptomatic Huntington's disease as well as many asymptomatic individuals "at risk" are taking drugs and over-the-counter agents that have been shown beneficial in genetic models of this disease. HDDW's primary objective in the ITT endeavor is to bring both of these HD groups, asymptomatic and symptomatic, to observed and supervised care while taking these drugs.

The HDDW goal is to provide information on treatments for Huntington's; both those for symptoms and those that may slow down disease progression.

The path from research to effective treatment for Huntington's disease is like a train on a track. Scientists built this train, with support from hard-working Huntington's organizations along with the sweat and tears of many HD families. Borrowing from Woody Guthrie's eloquent lyrics, this Huntington's train is truly bound for glory. The research engine has been fired up with explosive energy as more is learned about the biology of this disease in several model systems. This train has gathered speed as first one, then several drugs and agents have been found which partially treat the disease in mouse models. Scientists believe that drugs which are therapeutic in the mouse have the highest chance of success in people And in May 2007 we'll likely have proof of this concept with FDA approval of Miraxion (omega-3 EPA), one of the first supplements shown to benefit the mouse.

We'll endeavor to provide information on treatments that are available, and on those that are still in the development process.

Hope happens even in Huntington's. Hope happened in leukemia, hope happened in AIDS, and hope is happening even in Huntington's. It happens and grows with each scientific advance. It can’t be stopped. The first glimmer came with gene discovery: The door to the room holding the secrets of the disease had been cracked open. Then there was hope that sometime in the future more knowledge about HD could bring treatment. We knew that treatment or cure wasn't just around the corner. Hope was born.

Shortly after his death, Jerry Lampson was remembered by Marsha Miller from the Huntington's Disease Advocacy Center (HDAC) as an "HD warrior" and the "Keeper of the Huntington's Lighthouse". Her fond and extensive tribute with details of Jerry's life "before and after Huntington's" can be found here . What follows here is a personal perspective gleaned from only one year of shared purpose. In no way can it be an adequate or complete summary of his life.