Informal (Family) Caregivers for HD

Posted May 5, 2015 by LaVonne Goodman, M.D.

Care is described as informal when provided by unpaid family members or friends, and formal when caretakers are paid. Though a small subset of individuals with HD are cared for in the home through end of life, formal paid home healthcare services are frequently utilized. However the vast majority of individuals with HD, as the intensity of care needs increase will transition to long-term care facilities. In this situation, many family caretakers continue to advocate for and provide care.

What is known about informal care in HD?

 

 

 


 


 

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What is Laquinimod? Why Test it in LEGATO for HD?

Posted March 28, 2015 by LaVonne Goodman, M.D.

In a recent New York Times article, Dr. Siddhartha Mukherjee, a cancer expert from Columbia University wisely recommended that potential clinical trial participants ask their investigators "Why is the trial being done?" And "What were the data that led to the clinical trial in the first place?"

So, what about LEGATO and laquinimod?  What are the data that led to this drug being tested in HD?

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Treatment Guidelines for Huntington's: Who needs them?

Posted by LaVonne Goodman M.D.

During my years as an internal medicine physician, I have used standard of care guidelines for my patients with conditions like diabetes and heart disease. Guidelines are developed by experts in each disease who translate clinical trial evidence and/or expert experience into recommended care patterns for use in medical offices or at the bedside. When followed, guidelines have been central to improving the quality of care provided by all physicians whether they are specialists or generalists.   

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